Tuesday, April 5, 2011

Things I've been reading lately about fibro

I've been on a arthritis site and keep reading comments like these that I could have written. I go to the dr Thursday and hope and pray something can be done.

*not including the names of the people leaving these comments, not sure how to get hold of them to ask permission. :/*
I have a question. I have had fibro for about five years and I have been able to work even though it wasn't always easy.
But for the last 4 or 5 months, my fibro has been unbearable. I still have a job; but daily I am having to face the fact that I am not able to work any longer. I have no quality of life because it takes all I can give to just get thru 4 days of work each week. By about 1pm each day, I am in so much pain and fibro fog that I can't remember what I've done or what I need to do

Sometimes I wish that the pain of Fibro could be seen on the outside, in order that people could have a little more sensitivity to the fact that pain changes everything( maybe friends could understand that if you are not working due to the pain, it does not mean this is a babysitting opportunity, or an invite to something where you are going to be sitting or standing too long, or that your motivated exercise buddy thinks this is the time to push you to walk around the block where there are steep areas, no sidewalks, uneven surfaces, grass whatever, or you would not be pulled into reading someone's graduate research project- because you are such a good writer.
I have not been prepared adequately to deal with this pain and other conditions related to it, like RA, and Osteo. I wonder if special Ops traing in the Military would be enough. Sorry for the downer- just would like to leave the pain in some triple titanium sealed vault with a non breakable code as the lock and thrown in the bottom of the sea of Antartica.

I could probably sit and read for days about this fibro crap.... It sucks.
Sent on the Sprint® Now Network from my BlackBerry®


Belinda said...

Wow. I'm so sorry you are hurting like that. I'm on meds for fibro, but they work fairly well. I'm able to do the things I want most of the time. At first the Lyrica made the pain almost disappear. But as the months have gone by, the pain has steadily increased again. Still not as bad as it was. The arthritis is a bigger problem. Getting old just plain hurts.
I hope the doctor can help you Lisa. It's just no fun to hurt all the time.